What's Mary up to?

Daughter and Nurse

Have you seen the fun video Ashton created to educate family and friends on how Mary keeps her heart supplied with all the right meds?   Check out the Mary's Heart Transplant Journey Facebook page and keep up with the fun videos posted throughout Mary's journey.  

Mary and Jon travel to Dallas

That's right more tests.  The great news is all those tests are paying off and she is officially on the heart transplant list!! 

"I just want to say I'm truly blessed by wonderful family and friends!! I have an amazing support group.  God has been answering my prayers.  I love you all more than my words can express!!  Live Love!!", --Mary

Mary's movie recommendations

The only bonus about being a night owl and spending a lot of time at home and hospital are the great movies and series.   Mary's top movie picks and series are:

Help, Forrest Gump, Danish Girl, The Shack, Bridesmaids

Netflix Series:

Sons of Anarchy, Shameless, Vikings, Games of Thrones, The Office...So freaking funny!! Google the CPR Epsiode.   You will bust a gut says Mary.

Full Report-Mary's Heart Report to help us all understand

Read an overall update and heart report from Mary's doctors:  Chronic Atrial Fibrillation, Chronic Systolic Heart Failure, Diastolic Dysfunction Chronic, History of CVA, Muscular Dystrophy, Limb Girdle, Cardiomyopathy & Presence of Automatic Implantable Cardiac Defibrillator.

Mary shares her experience on Insurance and paperwork

"Confusing is an understatement, the entire process continues to take patience, a lot of questions, pushing open closed doors and the constant love and support of my family and friends.  Special thanks to Jon and Ashton through this process."

Mary answers questions we all have

Mary will soon share her family's journey of what is known as the Sullivan's Disease, published back in the 1970's in the American Medical Journal.  At the early age of 7, Mary was diagnosed like many of her family members with a condition called Lamin AC Gene Mutation.  Over a dozen members of her family have been diagnosed with this same condition.   Many have pacemakers, are in the need of pacemakers or have even died in their early years from this disease.